Tuesday 6 October 2015

Radio Promotion!

Lake 88

Here is a link to Lake 88 and my interview for InFocus.

http://lake88.ca/media/150924.mp3

I am trying to publicize the Strengthening Families Together course, as it is so important for people who are struggling to understand and help their family members. If you know of anyone, or you think some of your contacts may benefit please pass along this information. I've created a Facebook public event and sharing this event on your page may help reach someone in desperate need.

https://www.facebook.com/events/826018157519342/?ref_dashboard_filter=hosting&action_history=null

Election

There is an upcoming federal election. While healthcare is primarily a provincial matter, there has been discussion of a federal pharmacare program, lack of a strategy for senior care, home care and mental health care in this election. Ask your candidates what they will do about these important issues and vote, vote, vote!
My opinion is that pharmacare could be a big benefit for those with mental illnesses. People who are not on ODSP or other income support do not necessarily have access to the medications which keep them well.

Sunday 6 September 2015

Back in the Swing of Things

Strengthening Families Together (SFT)

I have decided on dates for our upcoming fall session of SFT. We (Margaret and I) will co facilitate the 4 sessions of SFT on Tuesday evenings from 7-9pm at The Link in Smiths Falls (88 Cornelia St W Unit A4, side of the building) starting October 27th.
Pre Registration is appreciated as space is limited and time can be better spent addressing the topics of the course and the needs of the family members attending. Please email me at mentalhealthfamilies@gmail.com for more information or call Purple Yip at 1-800-449-6367 ext 244 to register. Purple will be handling all the intake/registration process.
I will be interviewed on Lake 88 promoting SFT!

SFT covers a broad range of topics including:

Psychosis
Recovery
Treatment
Medication Therapy and Side Effects
Non-Adherance
Health and Wellness Maintenance
Impact on Family
Grief and Loss
Self Care
Effective Communication
Mental Health System
Crisis Prevention and Intervention
Justice and Mental Health
Advocacy

Our Monthly Support/Education Meetings


Our meetings continue to be held on the Second Tuesday of the Month at The Link from 7-9pm. If you or someone you know thinks they may be interested in coming and sharing an area of expertise and answering questions about a topic of interest to our group, please contact me at mentalhealthfamilies@gmail.com.

Community Education Committee


We are looking for anyone who may be interested in serving on our Community Education Committee. Anyone who works or serves in the mental health/education/community services field and feel they can contribute would be welcome. We are beginning to plan for an event to be held during Mental Health Week 2016. We do not have many meetings to attend, so it is not a burdensome commitment.

Sunday 31 May 2015

CBT workshop for Carers by Douglas Turkington

CBT workshop for Carers by Douglas Turkington on May 23/24


I've written the report below based on my notes from attending the CBT workshop. If you have any questions about the material or about the workshop, please contact me at mentalhealthfamilies@gmail.com

Our monthly meeting will be on June 9th at 7pm at The Link in Smiths Falls, 88 Cornelia Street. We will discuss the workshop and any other topics you would like to cover.


Cognitive Behaviour Therapy for Psychosis by Douglas Turkington—Report/Notes


Rumination is thinking about the past and it fuels paranoia.
Worrying is thinking about the future and it doesn’t keep you safe.
When you catch yourself doing either, it is best to set a time to worry or ruminate. Postpone all worry and rumination till the time you’ve decided to do it. Usually less likely to feel important to do it at that time.

Hallucination is fairly common in people who are grieving, sleep deprived, etc. Does not mean you are psychotic.

Make sense of the psychosis—ask about the voices, work with the beliefs to help the voices settle, list possibilities of what the voices/delusions are saying and work at why they might be saying this.
Do Reality Testing—Work with person to help develop an experiment to help test their delusion or voices. Set up an agreement on what certain outcomes would mean in advance of doing the experiment. 
Peripheral questions (shows interest without challenging)
Personal Disclosure-share your own experience

OCD/Psychosis— belief that they caused things to happen due to their thoughts/actions.

Befriending vs CBT
Both worked very well. Befriending had best effect on delusions/paranoia rather than voices and negative symptoms. Once befriending ended, all delusions came back. Medical community starting to think that befriending for 20 sessions before beginning CBT is best outcome.

80% of people with schizophrenia respond to CBT. People with hallucinations are particularly responsive to CBT.  CBT is helpful in getting patient to take the medication and then become able to come off the meds. Kapur believes that antipsychotics encapsulate the delusion and pushes it below the surface and when antipsychotics are stopped the delusion will return. Need therapy to deal with the delusion either with or without meds.

Voices are often triggered by certain noises, particularly white noise. Noises like: birdsong, vacuum, traffic, air conditioner. Isolating when the voices start can help to narrow the possible triggers. Earplugs can often help with voices.

Helping the person with voices and unusual beliefs: write down the voices, ask others if they can hear them, localize the voices (where do they come from?), audiotape the voices, test out explanations (with the person, not in a challenging way, but by working with the person to help them), take a baseline voice diary (this will help identify patters so you can help find a trigger), help the person establish how they feel on and off the meds. Help change the balance of power: person vs voices, writing down the voices and shredding if they are too shameful or painful to share.

Teaching of specific coping skills is not happening!!! Telling a person to do something is not the same as demonstrating how to do it well and checking how well they are doing the coping technique once they have started. Very important to improve the coping skills.

Patients who cope well: believed they are stronger, experienced more positive voices, had less command voices, set limits on their voices, listened selectively, talked to others about their voices.

Patients who do not cope well: saw themselves as weaker, experience more negative voices, had more command voices, did not dare to set limits on them, tried to escape from the voices by using more distraction techniques.

Command (Imperative) voices: Voices that tell someone to go DO something. If someone walked straight up to you and hit their fist into their hand, they may have had a command voice tell them to go punch you and they were able to disobey the command at the last second.


Coping strategies for hallucinations and delusions:
Distraction: listening to music, playing the guitar, attention shifting, art, walk, pets, writing, dvd
Focussing: sub-vocalization, deep breathing, rational responding, schema work (attention shifting—Adrian Wells MCT—metacognitive therapy)

CBT is very helpful in non-compliance issues. Average person on antipsychotics takes their meds 2 out of 7 days. CBT can help the person understand why they are and aren’t taking their meds. “what is the first thought that occurs to you when you first look at the pill bottle?” helps gain insight into their beliefs and feelings about their pills.

Medication Non Compliance

#1 reason to comply with taking meds is that the prescriber is liked by the patient!!!
If the person has selected their own meds based on side effect information provided by prescriber, they are more likely to be med compliant.
All people have a tendency to focus on the side effect rather than the benefits. Need to review benefits regularly to ensure at least equal focus on benefit and side effect.
Greater healthcare provider turnover promotes relapse. Teams need to look at having a limited number or one main person who connects with the patient.

Placebo level results should NOT be a reason to use a med—especially one with lots of side effects.

Negative symptoms: Affective flattening (difficultly in communicating or expressing emotion), Alogia (slowness to respond, and not much to say), Avolition (Get up and go has gone, little motivation/social withdrawal), Anhedonia (Unable to get pleasure), Attention deficits (poor concentration/memory)
CBT is most effective at treating the positive symptoms of psychosis, IE) the hallucinations and delusions.

There are different types of psychosis.
Drug induced basis
Traumatic basis-CBT can help with the hallucinations/delusions and medication compliance, meds are not usually needed long terms if trauma is treated.
Biological basis-more likely to need to remain on meds long term, primary negative symptoms, most likely to be medication responders where CBT can be helpful in medication compliance.

Emotional neutrality in the home is crucial for recovery. Don’t push too hard/no nagging. Demonstrate that they are accomplishing something as long as they are enjoying it, even if it is lying on the bed. Emphasis is always on the attempt of the activity rather than on the completion. Start small (go to bed rather than sleep on couch) Work to re-establish social contacts daily chores. Start with attempting, then move to completion, then to mastery. Have the person make a list of their daily activities, and begin filling in daily logs of their activities.

Resources

Provider resources

High-Yield Cognitive-Behavior Therapy for Brief Sessions: An Illustrated Guide by: 
Jesse H. Wright, M.D., Ph.D.
Donna M. Sudak, M.D.
Douglas Turkington, M.D.
Michael E. Thase, M.D.

Cognitive-Behavior Therapy for Severe Mental Illness: An Illustrated Guide by:
Jesse H. Wright, M.D.
Douglas Turkington, M.D.
David G. Kingdon, M.D.
Monica Ramirez Basco, Ph.D.

Family caregiver resources

Back to Life, Back to Normality: Cognitive Therapy, Recovery and Psychosis by:
Douglas Turkington (Author), David Kingdon (Author), Shanaya Rathod (Author), Sarah K. J. Wilcock (Author), Alison Brabban (Author), Paul Cromarty (Author), Robert Dudley (Author), Richard Gray (Author), Jeremy Pelton (Author), Ron Siddle (Author), Peter Weiden (Author)

Treating psychosis website has numerous links and resources. 

Monday 13 April 2015

CBT for Caregivers

CBT weekend workshop May 23rd & 24th


The Royal (in Ottawa) is hosting a CBT weekend workshop for caregivers. CBT (Cognitive Behaviour Therapy) is helpful for a broad range of mental health issues. Douglas Turkington is a pioneer in the use of CBT for people experiencing psychosis. He has written a number of books on the use of CBT for treatment of psychosis and is heavily involved in numerous clinical trials on this subject. We are very fortunate to have the opportunity to attend this workshop, somewhat locally, that is presented by such a world leading figure on this subject. There is a small cost which includes lunch both days of $50.

Douglas Turnkington Bio
https://www.regonline.com/builder/site/tab1.aspx?EventID=1702888


CBT Event Flyer
http://www.theroyal.ca/mental-health-centre/news-and-events/events/cognitive-behaviour-therapy-cbt-for-family-members-carer-workshop/

Support and Education Group


Don't forget we have moved our recurring meeting date to the second Tuesday of the month, which this month is April 14th at 7pm at The Link in Smiths Falls.

Friday 27 March 2015

New Meeting Dates

Second Tuesday of each Month

We will begin meeting the Second Tuesday of each month at 7pm at The Link. I am working on agenda items and guest speakers for the next few meetings. I have a number of ideas, but would welcome any suggestions or areas you would like covered.

Consent and Capacity

One area that has received some attention of late is consent. A number of family members have asked me about having appropriate consent for medical professionals to share information about their family members with them. As long as the patient wishes, and is competent to make that decision, they can fill out a consent form allowing and specifically asking medical professionals to share all medically relevant information with you. Sometimes a patient does not wish to have their medical information shared with family members and if they are competent to make that decision there is little that families can do.

Here is a link to a CMHA page dealing with consent, capacity and substitute decision making. At the end of the page there is a link to a sample document which could be used by family members to have the patient extend consent to their health care providers to share information with family members.

http://ontario.cmha.ca/public-policy/capacity-building/privacy-toolkit/chapter-3-consent-capacity-and-substitute-decision-making/


Friday 27 February 2015

Finding Evidence in Information Overload

Recent Education Event

We were very fortunate to have Jeanette Smith from CADTH (Canadian Agency for Drugs and Technologies in Health) join us for 2 sessions on Feb 19 to educate us on the difference of Evidence vs Information. She shared a wealth of information, some of which I will try to capture and share here, for those who were unable to attend.

Sifting through Information Overload to find the Evidence

Here is a link to a news article about peanut allergies in The Globe and Mail:


Here are a couple paragraphs from the article with the important searchable information highlighted.

“This is an important clinical development and contravenes previous guidelines,” said Gideon Lack, who led the study at King’s College London.

In results published in the New England Journal of Medicine, Lack found that fewer than 1 percent of the children who ate peanut regularly as required had become allergic by the end of the study, while 17.3 percent in the avoidance group had developed peanut allergy.

By searching for the following in Google, "Lack peanut allergy New England Journal of Medicine" I found the study as the first result in Google. The link to the study is below.

Clinical Trial vs Study vs Expert Opinion

There is a significant difference between a double blind clinical trial funded by a source with no vested interest in the outcome and an expert opinion. Someone with an expert opinion may or may not be correct, but there is not quality data to back it up either way. Not all clinical trials are of a high quality. If you are digging deeply and wish to ensure that you are using sound data to make important health decisions, and you are relying on a clinical trial, please ensure it was completed using sound practices. Studies fall somewhere in between. They are created by looking back at data that has been gathered. There are fewer controls in place and there are more variables that are in play. Keep in mind this acronym: 
PICO 
Patient Population: Are you looking at the same population being studied as is relevant to you (age, diagnosis, sex)
Intervention: What intervention is being investigated (medication, therapy, technology)
Comparators: Is the intervention being compared to another intervention or to placebo (drug being compared to other therapies, or placebo, or other drug, and/or various dosages)
Outcomes: What are the outcomes? Pay attention to the numbers 5 percent showed improvement, is different than 90 percent. Also how much improvement?

Ghosts

The people who write the studies are not always the people who perform them. Some companies hire and train study writers to project the study in a certain light. If one intervention is 5% effective and another is 6% effective, a study writer could say that the second intervention is 25% MORE effective that the first, yet there is only 1% difference in the outcome and both are not very effective at all. Be careful of the spin.

MICAOntario (Mental Illness Caregivers Association)

This workshop was presented in partnership with MICA. They are a great organization comprised of family members, caregivers and consumers committed to assisting caregivers and their family members in managing the effects of serious and persistent mental illness and/or addictions through education, guidance and support. Their website is below.

Other websites of interest for research

The Canadian Agency for Drugs and Technologies in Health (CAN)


The National Institute for Health and Care Excellence (UK)


The Agency for Healthcare Research and Quality (USA)


The Cochrane Collaboration (International)










Tuesday 13 January 2015

WRAP being offered by MHSP The Link

WRAP Wellness Recovery Action Plan

I have just received confirmation that The Link will be offering a WRAP workshop for people with mental illnesses. WRAP stands for Wellness Recovery Action Plan and is a framework that is created to help a person understand what they look, feel and act like when they feel well, when they are starting to slip in their wellness, and help them take steps to avoid becoming seriously unwell. This tool helps a person to be more involved in managing their own care and identifying what works best for them, and who they would like to have involved in their care.
Below is a link to the WRAP website which gives further information on the process.
http://www.mentalhealthrecovery.com/wrap/
Contact The Link for more information or to register.
http://www.mhsp-links.ca
613-284-4608
Tues Feb 3 2-3:30pm for 8 weeks.

Workshop about Health Evidence 

Thurs February 19 2015 
2-4pm for Service Providers
6-8pm for General Public
The Link - Mental Health Support Project
88 Cornelia St W Unit A4

email mentalhealthfamilies@gmail.com for inquiries.

“A new study released today says…”

Every day media outlets bombard us with findings from the latest research — evidence intended to shed new light on ways to improve our personal health or our healthcare systems. Beyond the media, the Internet also provides abundant access to countless sources of health information and evidence, making it readily available for all to explore. But for those of us with little to no experience in science or healthcare or research, how do we make sense of all that information? What is it saying and what can we trust?

This introductory workshop will begin with an examination of the concepts of evidence in healthcare, the information that clinicians and decision-makers rely on when making choices for patients and for our healthcare systems.  Participants will learn some basic tips and tricks for locating evidence and then delve into the key factors that a well-designed, meaningful study should contain.  Next, with examples in hand and working in small guided discussion groups, participants will learn how to read a scientific study through a critical lens to uncover its key basic messages. What is this research actually telling us? We’ll end by taking a look at the concept of health technology assessment, discussing its role and value in the world of decision-making.


Geared to patients, their family members and advocates, students, junior-level government and health system administrators, anyone interested in an introduction to health evidence, this session will provide a first step on that journey of understanding.